Right Now...

Posted by Mishi Methven on Aug 31, 2011


 Right now…

The air conditioner is humming in my ear as I type, blowing cold air on my already chilled arms.  But I don't turn it off or because my 33-weeks pregnant wife is sweating in the room beside me.  The TV is on.  It's the movie Shrek.  I can't bring myself to watch anything that requires more thought than that right now.  I feel tired, but my mind is buzzing and I want to write something.  My fingers are itching to type something, my brain is whirring a bunch of incoherent thoughts that always loop into, "I can't believe this is my life…"  

 

Right now…

Stella is sleeping soundly in her bed, blissfully unaware of the chaos that surrounds her.  She has a streak of lipstick on her cheek from where Omo kissed her at dinner, flaking green paint under her nails from the painting she did yesterday and dirt on both her knees from an exciting day playing with Aunties Heather, Andge and Juju.  She is clutching a cheap fish she got at the Ex yesterday and a massive Smurf she dragged home from somewhere.  Her breathing is even and deep.  The morphine we gave her before bed makes her sleep hard and fast, but (hopefully) pain free.  Hopefully.  I am in so much pain all the time, I feel like downing the morphine myself, but I know that it won't make my heart stop hurting so I drink Pepsi instead.

 

Right now…

My "To Do" list is sitting on the table next to me.  It reads:

1. Thank-you emails for J, A, A, D, F, B, N, J, T, P, L, E, R

2. Clean out fridge

3. Charge camera

4. Return email from funeral parlour re: font and finalize details (down payment???)

5. Plan playdate/dinner with A, K, S, S & S 

6. Rebook meeting at cemetery with Chris re: plot selection

7. Clean out closet

8. Refill Cipralex prescription

9. Buy bread, Pepsi, ice cream and birthday candles

 

Right now…

Aimee is chatting on the phone to one of her oldest friends.  She is laughing and her eyes still sparkle, just like always.  I wonder how she can still sparkle when I feel so dead all the time.  She is amazing.  Her cute pregnant belly sticks out from her shirt.  It's a shirt we bought together the day after we got married, August 2006.  That feels like a lifetime ago.  Before we had Stella.  Before any of our grandparents had died.  Before our daughter got diagnosed with inoperable, fatal brain cancer.  Her belly is sticking out slightly, a stark reminder of how precious life is and how we have no choice but to move forward because time doesn't stop for anyone.  Not even a curly-haired imp whose smile makes my throat constrict with a combination of joy and despair.

 

Right now…

My stomach is hurting.  Probably shouldn't have eaten the Jos Louis after dinner.  I used to eat them in High School during exams.  They taste so stale and crumbs always fall in my lap, but they're strangely comforting to me right now.  I keep buying boxes of them.  Jumbo boxes.  Some days that's all I eat.  Just Jos Louis.  My jeans are fitting bit looser than they used to.  The wrinkles in my face are a bit deeper.  My hair is long and always yanked back in a messy ponytail.  The freckles on my arms are dark this year because I've spent so much time outside in the sun.  Making memories.  Making up how I really feel.  Making it.  Faking it.

 

Right now…

There are three plastic bins sitting just behind me waiting to go up to the attic.  They are labelled "Work Clothes".  I don't know when I'll go back to work, but I know it isn't right now.  It felt weird to pack away my work clothes.  The last time I did that I was pregnant with Stella.  I remember as I was packing them away in that early spring of 2009, she did a huge somersault in my stomach and I laughed, thinking about how my baby was doing flips at the thought of getting to spend 8 whole months with me.  Now the clothes are being packed away because I am the one who wants to spend time with her.  A few days ago she was demanding to go back into my stomach, the place she knows she came from and the place she knows her brother lives in Aimee.  As she desperately pounded by stomach, yelling she wanted back in I was laughing and crying at the same time.  How I yearn for the time when I could keep her safe and sound in my tummy, away from the harshness of the world, away from pain and hurt.  Back when I knew she was okay because I could feel her moving inside me, when we shared a lifeline and her warmth was like having hot chocolate in my belly all the time.

 

Right now…

I still need to pack for the cottage we're going to tomorrow.  Need to go to the attic and haul down the pack'n'play.  Need to figure out what books and toys to bring.  Need to pack snacks and bottles.  Need to put everything in the car and drive three hours up North for the 11th time this summer.  Back and forth we drive, getting Stella to a bunch of cottages where she laughs and plays and gets to love her life.  Where we get to be with friends who love us and tell us we will be okay.  Where people cook for us, look after us, love us.  But it's tiring to keep packing, unpacking, driving.  We get out of the city but we never get to escape our life.  It's like a jail made of sunlight. 

 

Right now…

I miss my life.  I miss the friends that I can't bring myself to call or talk to anymore because I can't pretend to have social conversations when all I want to do is scream and cry.  I miss school.  I miss work.  I miss standing in line at Tim Horton's every morning and being entertained by the characters that hang out at St. Mike's hospital.  I miss looking forward to Hallowe'en and Christmas.  I miss juggling play dates with BBQ's.  I miss planning how Stella will take soccer lessons when she's three, go to camp when she's six and get into that damn daycare she's been on the list for since I was 8 weeks pregnant.

 

Right now…

I feel lucky, I feel unlucky.  

I laugh, I cry.  

I am tired, I can't sleep. 

I get, I give, I get.

I  feel everything, I feel nothing.  

I am me, I don't know myself.

I need nothing, I need everything.

I am strong, I am weak.

I want to reach out, I want to run away. 

I am surrounded by people, I am lonely.

I am overwhelmed.

I am angry.

I am grateful.

I am lost.

I am loved.

I am scared.


Right now...

Stella lives and breathes and laughs and loves.

 

Right now...

I am Stella's Mama.  

FOREVER..

I am Stella's Mama.

 



Comments (15)

  1. Nehama :
    Sep 04, 2011 at 06:37 PM

    Just to say how much I love you and how much love I am sending you, Aimee and Stella.
    My heart is filled with this love and with the tears and laughter that fill up the universe.
    Nehama

  2. Vincent:
    Sep 04, 2011 at 03:21 PM

    good evening Mischi,

    You don't know me, but i know Christine from caution muse crossing. I told her about her site, and how i loved her stories she told there. She said "i have to do something about that because i haven't posted something in a long time". Then this story showed up and i was like..................I can't do much much over here, i'm in Holland and you'll probably get millions of emails like this. But i just want to wish you all the strength in the world

    Vincent

  3. David Layfield:
    Sep 04, 2011 at 09:42 AM

    I am a friend of Christine and also lucky father to Joe & Lucinda
    My heart bleeds for you...I don't know you, only your heart stopping plight and the powerfully honest stabbing words you have written and shared with the World
    I have little, as good as nothing, to offer you by way of any peace or solace to your living torment but I will combine with all who know you to send my love across the World as I sit typing gazing at the sky we share.
    We were all blessed with the wonderful love of children...I give you my love and the hope that you find the continuing strength to walk the lonely path you walk, now with one extra friend

    David Layfield (new friend, old Dad) x

  4. Perlita Portugal:
    Sep 03, 2011 at 10:41 PM

    Till now I don't what to say because my heart is breaking into pieces everytime I'm reading updates about Stella. Her picture from her 1st birthday is still saved on my phone and sometimes looking at it when I'm alone. Still praying hard for miracles to happen. My thoughts and prayers are always with you.

  5. lisa depaola:
    Sep 02, 2011 at 02:53 PM

    I am forever reading your posts..I keep thinking this cannot be but it is so real. Keep her close to you and as Mary said enjoy every moment and live in the now. When I read i get goose bumbs it reminds me of my sisters journey..she still is not working..still cannot come to grips with this all and she keeps asking why.!
    Hold her and keep her as comfortable as possible..she knows she is loved and that is whats important to her today and every day.
    Have a great time up north.! Take lots of pictures! catch some butterflies and let them go! Catch a frog and let her smile!
    with home and Love in my heart
    Lisa DePaola
    Angel Johnnys Aunt.

  6. Kim Vaughn:
    Sep 02, 2011 at 10:55 AM

    I learned of your family, and sweet Stella, through the Yahoo DIPG group. I've read through almost all of the journal entries shared - each one touching and offering beautiful glimpses of Stella and her personality. I want you to know that I'm sorry your beautiful girl is going through this....I'm sorry your family is faced with this heartache. I am holding you all in my prayers, with hope for much strength and comfort. Keep holding eachother close, and doing your best. There is no doubt that Stella is surrounded by many people who love her, and that is such a blessing.

  7. Mary:
    Sep 02, 2011 at 09:41 AM

    Just focus on the right now - soak up everything you possibly can and tuck it away for later. Keep smiling - always laugh with Stella. She will always feel safe with you - in or out of your tummy :o) Know that I know the loneliness, the fear, but I also know the amazing love that you both have for Stella Joy. And that will never go away - and she will know of that forever. Praying for peace and comfort.

    Hugs from us and our special Angel Emma and Blankie
    www.caringbridge.org/visit/emmab

  8. Amy:
    Sep 02, 2011 at 07:46 AM

    So beautifully written, again. My heart breaks for you every day and I think of you all often.

  9. Carrie-Anne:
    Sep 01, 2011 at 05:03 PM

    Hi Ladies,
    I first heard about your story through another memember on Momstown.ca. Your story when I first read it brought tears to my eyes. I have a 4 yr old son and Twin girls 2yrs old. I cannot imagine losing a child. After I read your story, I went up to my kids and gave them each a BIG hug and kisses. I said to them Just know that you are loved!

    I read you updates often and think of Stella often as well. My thoughts are with you. You both are so strong and are truly making your daughters life memorable!

  10. Serra:
    Sep 01, 2011 at 03:05 PM

    Oh Mishi, every post you write makes me break down and cry. It just makes me sick that you are going through this. Not a day goes by that I don't think of you. Sending hugs.


Go to Comment Page 1 2 





Allowed tags: <b><i><br>Add a new comment:


Enter the text you see below to post your comment