Gracie's Grace
Posted by on Jan 23, 2013
Gracie's Grace:
Gracie was the first baby to be born into our family. She arrived in the spring of 2008 and dozens and dozens of family members and friends celebrated her birth. The first niece. The first grandchild. The first daughter. The first child to carry the hopes and dreams of the next generation in her dimpled little fingers.
When I got pregnant with Stella, Gracie was 4 months old. Aimee and I were thrilled that our child would be so close in age to Gracie. We didn’t find out the sex of our baby, but both whispered excitedly at night as we dreamed of our future, that it would be amazing if it were a girl so that our daughter and Gracie could be “besties” forever. Retrospectively, I’m not sure why we felt so sure that only another girl would be best friends with Gracie. I think it’s likely because Aimee and I are both best friends with our sisters, so it seemed natural that another girl would be the right fit. When Stella burst into the world, just before Gracie turned 13-months old, one of the first things Aimee and I said to each other was that our little girl was destined to be best friends forever with Gracie. With her doe-like green eyes, dark brown a-symmetrical haircuts, lean frame and olive skin, Gracie was the polar opposite (in looks) to our chubby, porcelain, mop-top daughter. But somehow, right from the beginning, they just fit together and complemented each other perfectly.
Everything we did was for or with “the girls”. We bought them matching pyjamas to wear at Christmas. We took them everywhere together…to watch Tutu skate, to Great Wolf Lodge, to Mexico, to the park, to concerts, to drop-in centres, swimming, cottaging, Maple Syrup-ing, etc. etc. The girls were inseparable. Stella became Gracie’s “Stellie” and Stella called Gracie, “Gwacie”. Gracie was the perfect older cousin. She was always very gentle with Stella, very caring and protective. When Stella could only crawl, Gracie would crawl too, even though she was capable of running circles around her. Stella was always more outgoing and daring than Gracie. I remember taking them to a petting zoo when Stella was 11 months old and Gracie was days away from turning two. Gracie shied away from the bleating sheep, while we had to restrain Stella from pushing both her chubby hands through the split-rail fence and into the sheep’s eyes. Gracie was sweet. Stella was cheeky. Gracie was timid. Stella was bold. Gracie was athletic. Stella was clumsy. Gracie was tender. Stella was rough. Gracie liked sitting for movies and shows and books. Stella liked running and throwing and sliding. They both loved to dance. They both loved Great Wolf Lodge. They both loved animals and they both thought the other was the funniest person they’d ever met.
The hours after we received Stella’s fatal diagnosis are mostly a blur to me. I’ve tried hard not to think too much about them because it is too traumatic to relive. But, one memory which always stands out clearly from the rest, is a vivid picture of Andrea--_Stella’s beloved Auntie Andgie—crouched over on a wooden bench on the 5th floor of Sick Kids Hospital, tears streaming down her face. I remember her looking up and saying, to no one in particular, “What are we going to do about Gracie?” Our hearts sunk even lower than they already had. The despair and sadness swallowed me up whole in that moment. Not only would Aimee and I have to learn to let our daughter go, but Gracie was going to have to grow up without her "bestie". It was nauseating.
With the help of our friend and resident Children’s Grief expert Andrea Warnick, we were all able to speak to Gracie about Stella’s tumor and for the most part we think she understood. As Stella’s body changed, Gracie changed her playing to accommodate her. Chasing each other around in circles became playing tea party together when Stella couldn’t walk anymore. Watching puppet shows became reading books and eventually, when her eyesight and motor skills were fading, watching TV, became just cuddling.
Gracie was present every step of the way as Stella lost her faculties. She never seemed jealous of the attention Stella got, never got mad about the weekly birthday parties we threw for her, never fought for attention from doting grandparents who admonished her to “be gentle” with Stella. Gracie sometimes asked questions about Stella’s tumor, and once in awhile expressed her wish that Stella would be able to run again and talk again and “not die”. But for the most part she just bounded into the house day after day and stretched her imagination to its limit as she found ways to engage with Stella in a much more natural and healthy way than any of the adults ever could. She was always the caregiver in their relationship, but she also took on some of Stella’s bravery and boundless energy when Stella’s started to wane. Gracie was at the house just moments after Stella took her last breath. She spent time with her body after she died, and wailed in raw agony as the black car carrying Stella’s body drove out of our driveway. But for the most part, Gracie seems to be dealing with Stella’s death in the same way she accepted her physical changes---quietly and openly.
Gracie talks often about Stella. Saturday she peeked out the window in Stella’s room and said to us, “I’m just checking to see if Stella’s spirit is still playing outside. She said the backyard is her favourite place”. Gracie constantly draws pictures of herself with Stella. In these drawings, Gracie is always twice as big (because she’s the “big” cousin, after all!) and she always puts mounds of curls on top of Stella’s head.
Gracie still comes to the house. She often goes into Stella’s room and pulls out a piece of her clothing to wear. The clothes are all too small, but she puts them on regardless and breathes life back into Stella’s toys and spaces, which is like a balm for our bruised souls.
Now it is Sam whom Gracie runs to when she walks into our house. It is Sam who follows her reverently around, basking in her energy and attention. It is Sam who she chases and grabs in big hugs. Now it is Hugo who she looks after. It is Hugo she protects. It is Hugo she feeds bottles to, and holds. Gracie has a different relationship with our boys than with Stella. But she loves them just as fiercely, and I am confident that despite a 4-year age gap and difference in sex, their relationship will continue to grow and will become vitally important to all of them. And Xavier is in the mix of cousins too. When Sam and Xavier were born just hours apart in October of 2011, I said that they were destined to be best friends. Then Aimee and I began to cry because we remembered another set of cousins who were supposed to grow up as close as siblings as well. Xavier is a sweet-faced boy who is twice the size of Sam, but a gentle giant who has already shown a love for music and cuddles. Together, this motley group of children bring laughter into an otherwise weeping house and hope where hopelessness grows much too easily.
I am curious to see the kind of person Gracie will be as the years pass. It will always be bittersweet to watch her navigate life without Stella. I know I will always wonder, “what if…” and I know I will always cry when Gracie experiences or accomplishes something that Stella should have been there for. But, in the absence of my own daughter, Gracie is there to wear dresses and listen to my crazy theories on how Cinderella and Sleeping Beauty were sisters. Gracie is there to alternatively play with, and tease, Sam and Hugo. Gracie is there to dance in the living room and colour pictures for the fridge.
Just like Stella Joy, Gracie is aptly named. Her name means “Thanks”, and I am very grateful for her indeed.
This is a video made by our friend Chris Yap. It was shown at Stella’s Funeral (aka Stellabration of Life aka Stella’s Celebration of Love). I have never gotten through this video without bawling, because I think it really highlights how much love Stella had in her life. And it shows clearly the adoration of Gracie, and her best friend/cousin:
Some of the drawings Gracie has done recently of her and "Stellie":
The boys:
Comments (24)
JustAnotherJenny:
Feb 17, 2013 at 07:10 PM
I'm still so heartbroken at the loss of your fiery Stella. I cannot imagine your grief. I think of you all so often.
Thank so much for sharing that beautiful video. Not a dry eye in the house. xoxo
I'm attempting to embark on my own journey to parenthood and I hope that I will parent with as much love and intention as your amazing little family.
Tammy:
Feb 05, 2013 at 10:04 PM
I just wanted to let you know that I miss Stella. I know it sounds weird to say I miss someone I never met but I do. I miss seeing pictures of her, I miss checking in every night to hear about how she was doing. Some of the stories made me laugh, made me feel inspired and made my heart break. I still pray for Stella and for all of you and wonder how you all are managing. One thing I wasn't prepared for when I became a mother was that you live your children so much that it actually breaks your heart. The very thought of something happening to them makes my eyes sting. It isn't fair that your girl was ripped away from you by this terrible disease. It actually makes me angry. Why does this have to happen to anyone's child? Stella had taught me to live in this moment. It's because of her we went on our trip to Cuba, I used to think why would anyone take small children on vacationj? Seems like a lot of work and they would be we remember it but reading about Stella made me realize that even though my kids won't remember being there they had so much fun while they were there. They loved every moment and I loved watching their joy. Thank you again for sharing your daughter with all of us and please know she has not been forgotten.
Claudia:
Feb 05, 2013 at 07:58 PM
I saw this on Facebook and thought of you,
Silent Grief - Child Loss Support
When a family loses a child, the loss isn't a clear-cut loss. This loss is emotional, physical, mental, and many times also affects the spiritual part of one's life. Child loss takes away so much joy from today, but also snatches away a significant part of our future, and also takes away a large part of our identity! How, then, is it possible for others to think that this loss compares to any others? How, then, is it humanly possible to return to work, normal family life, the routine of the day in the matter of a few days or weeks? This is NOT possible, and we need to constantly remind ourselves we're not crazy; we are experiencing grief of the deepest form known to humankind! And, it takes time -- many times years -- to find some kind of placement in this life again! God bless every family who is working through the raw grief of child loss today!
Hoping you have some rays of sunshine this week, love and hugs "To Infinity and Beyond"
kathie:
Jan 31, 2013 at 10:35 PM
Mishi and Aimee - a friend shared this article in the Huffington Post with me, and of course I thought of you because of all the messages in it. I'm sure your boys will have holes in their bed too, if they don't already. Regardless of what all those parenting books tell me, when I'm 80 I will look back at those hours spent with our so and our small dog taking up more bed real estate than my husband and I put together.
Thinking of you:
http://www.huffingtonpost.com/sheila-quirke/the-hole-in-the-middle-of-the-bed_b_2537459.html
Heather:
Jan 30, 2013 at 10:33 PM
I have no doubt that Stella is always around Gracie. Kids are much more sensitive to spiritual energy. Gracie is a beautiful, gentle and compassionate soul and she will be a great source of healing for all of you and will keep you connected to Stella. Thank you for sharing the video made by your friend Chris. It really captured Stella and her personality. I watched it and balled like a baby. I also watched it with Anthony and Ella and it was beautiful to see their faces light up when they were watching Stella and Gracie and the boys. They thought it was hilarious how Poppa took her for a ride in the pool and every time Stella laughed, they did too. I loved the 'drive thru' and Stella dancing. Lots of love to you all. There isn't a day that goes by that I don't think of you or say a few words up to the sky hoping Stella will hear me.
ShannonH:
Jan 30, 2013 at 01:11 PM
Thank you for posting the video. It was beautiful to hear and see Stella so happy.
I've always thought Gracie is one of the superheroes of Stella's life. I was constantly amazed to read about how she seemed to handle Stella's illness so well, simply adjusting the way she played with Stella when needed and always wanting to be at Stella's side. She's sounds like a great kid. I'm glad she's bringing you some comfort now.
Heather:
Jan 29, 2013 at 11:30 PM
what a lucky girl. so loved!
Natalie:
Jan 29, 2013 at 09:29 PM
Peace, Love and hugs to you all. I wish that this wasn't Gracie's story as much as I wish it wasn't yours. I'm hoping with all my heart that Stella's vivacious spirit will guide someone into Gracie's life to remind her of Stella and be a forever companion. Stella will never be replaced and she will always be remembered in my heart and Gracie's (and tons of other people!!!). ((((HUGS))))
Jenn:
Jan 29, 2013 at 08:56 PM
Thank you for sharing this video and letting us see Stella's spark!
I've just spent the last 2 hours watching videos of Stella, catching up on the blog and watching the funeral videos. I'm glad you shared the Stellabration videos with us. Your strength to push through that day amazes me!
Wishing you peace and love as you continue through your journey.
Claudia:
Jan 29, 2013 at 05:51 PM
Thank you for sharing that beautiful video, I smile, laughed and cried through it. What a blessing Stella was for everyone in your family and what a blessing Gracie is. Your boys are very lucky to have her. It always amazes me how strong children are and without even knowing they are able to bind together what is broken. I keep all of you in my thoughts daily and know that Stella is hanging with my Jackson lighting up the skies.
Hugs "To Infinity and Beyond"
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