Ghost Town

Posted by Mishi Methven on Dec 10, 2011


Ghost Town

 

A few days ago I was tidying the house, trying to get a handle on the clutter and mess that constantly creeps into every surface.  There is a complex cobweb that lives in the lower corner of one of our front leaded glass windows; it's almost a piece of art.  In our attempt to clear out a corner of the living room to make room for a small Christmas Tree, I decided to put a few things in the shed out in our backyard.

 

As I walked across the grass, my boots crunching down on the thin layer of frost on the grass, I was suddenly struck at what a ghost town the backyard looked like.  Stella's slide set sits under the tree where we moved it in the hot days of summer so it would be shaded and not get too hot for her to slide down.  I remember so vividly how proud she was of herself in early spring when she was able to climb up the ladder and whoosh down the slide by herself.  "WHEEE!" she always exclaimed joyfully as she flew off the end.  I remember when Arin and Flora both came over one evening and the three kids were falling over one another trying to get up and down the slide, giggling and chasing each other around the green grass.

EARLY MAY, 2011

 

Stella can't sit up unassisted anymore.

 

In the corner of the backyard sits Stella's playhouse, built for her by Poppa Noel in May of this year.  It's an awesome playhouse with a cute little door and a stained glass window.  Inside is a toddler sized wicker couch and a cradle with a pillow and tiny mattress.  I peeked through the window and saw Stella's stuffed giraffe lying forgotten in the cradle, it's eyes glazed and foggy.  When my dad first finished the playhouse Stella was so excited she refused to come inside with me after daycare when I needed to go to the bathroom.  I remember I left her in the playhouse and when I came back outside a few minutes later, as I rounded the corner I could hear her loudly singing "Itsy Bitsy Spider" to herself.  I opened the door and said "What are you doing!?" loudly and she dissolved into giggles, running forward and pushing the door shut with both her chubby toddler hands.  She loved being in that house so much she sometimes made me bring the potty outside so she could pee in the playhouse.

 JUNE, 2011

Stella wears diapers now and  is so weak she needs me to manually help her with bowel movements.

 

Her raised sandbox is pushed against the brick wall that is the outside wall of Sam's bedroom.  It is plastic and was once brightly coloured, but is now faded from being outside for two summers and a winter.  Stella and Arin used to get into sand fights all the time there.  Arin liked to pour the sand on his head, which when your hair has oil in it, makes seem as though it's glued in.  One time I turned my back for just one minute and when I turned back they were freely dumping buckets of sand on one another's heads and crunching contentedly the dirt sticking to their lips.  Ugh.  No matter how many times we would say, "sand stays IN the sandbox…" there was always piles of it down Stella's shirt and in her little socks.  Aimee loves to BBQ and so we would have lots of family dinners outside.  Stella loved hamburgers the best, smothered in ketchup that dripped down her chin.  I have about eighteen t-shirts with ketchup stains down the front.

 SANDBOX WITH FLORA, MAY 2011

Stella can only eat soft foods now.  Applesauce, mashed potatoes, mushed avocado.

 

When I opened the door to the shed, Stella's bike was the first thing I saw.  She got the bike as a gift for her first birthday from Grand Pa John and Nanny Sandy.  When she got the bike, her legs were way too short to hit the pedals, but she liked to sit on it and we would push her.  She actually loved to put on her helmet and go around and around the block by our house.  This spring, her legs could hit the pedals and we would often take the bike to the park near our house.  Stella would sometimes refuse to get off her bike because she loved it so much, and instead of playing at the park would just pedal round and round in circles through the dry wading pool.

 STELLA AND GRACIE, JULY 2011

Stella's legs don't move anymore.  They are stiff and weak.

 

Her wagon sits underneath the bike, bright red and full of memories where we went to our friends house, to the park, to the zoo, to cottages.  She loved sitting in the wagon and inviting as many people as possible to join her.  We could fit up to three kids in it!  She liked us to go fast and would laugh out loud when we said, "faster!" and ran up the dirt roads by the cottage to get to the ice cream stores.  She always looked like royalty peeing over the sides and observing everything.  "Look Mama, birds!" she would call out, pointing.  Then we would sing her favourite song, "You Could Have Been a Rutabega," and wave our hands back and forth saying a loud, "HELLO!!!" to every animal we met along the way.

Stella doesn't sing anymore.  She can barely make any noises at all.

 

The basement playroom is the same as the backyard---like a snapshot of a time long gone.  It's as though someone has it set up and it's just ready and waiting for a kid to come play in it.  Her craft table sits with two chairs at the ready, markers and crayons lay at the foot of one chair where they fell months ago.  She was so good at writing.  As soon as she could hold a pen, she held it properly---with her thumb and forefinger, and did page upon page of neat little lines.  She loved painting…although her foray into art often led to a tantrum that culminated in her throwing a paintbrush dripping with paint against the wall.  Stella's beloved toy kitchen, a Christmas gift from Tutu Marilyn last year, is still littered with plastic food and a toy teapot the red paint still shiny and new.  Two months ago I made Auntie Andge take all the "mobility" toys and shove them in a dark corner of the attic so I didn't have to look at them anymore.  They are out of sight, but I can still see their shadows in the playroom, marking the days when excitement bounced off the walls and filled the air with laughter.

 APRIL 2011

Stella can't hold a pen anymore.  Or a paintbrush or spoon.

 

Her bedroom looks more like a storage room than the little girl's bedroom it once was.  The bed is removed, most of the toys that littered the room and the books from the bookshelf are now stored away in nondescript garbage bags in the attic marked simply, "Stella's Room 2011".  Now, instead of lego, the middle of the floor features a cardboard box filled with syringes, cotton balls, medications and a sharps container.

 

Stella doesn't come here anymore.

 

The term "Ghost Town" always made me kind of sad.  It was hard to believe that entire communities could just disappear and leave behind only useless objects to tell the stories of the vibrant men and women that once walked there.  I remember reading in a book once that a Ghost Town is a community that has faded greatly from its peak and is now just a shadow of its former self.  Seeing all of Stella's things sitting her unused, their stories silenced by the cancer that is taking Stella away from us, makes me wonder if Stella is just a shadow of her former self.  She has lost almost everything.

 

But no.  It's not really her.  It's us.  WE have lost almost everything about the daughter we once had.  She has not lost herself.  She has held onto her spirit, her smile, her stubbornness, her ability to make others laugh.  She has not abandoned her ability to love us unconditionally, hug us, challenge us and confuse the Hell out of us.

 

She is not a shadow of her former self, I am. 

 

Parts of our house may be turning into a physical Ghost Town, but the will to live life fully, to love one another wholeheartedly and to smile even when you want to cry means that there is still a vibrant community living here.  

 

Not a Ghost Town exactly, just a town who has reinvented itself to focus on love, beauty and life instead of things.  But it still hurts to see all those objects forced into stillness by a horrible disease.  

NOVEMBER, 2011

 

 



Comments (28)

  1. Yvette:
    Dec 22, 2011 at 03:19 PM

    When you began your blog and this jouney of Stellas life I could only relate as a mother who adores her son like nothing else on earth. And now for the past 2 months I have been supporting my younger sister through her recent diagnosis of breast cancer. And now I understand the fear, the panic, the unknown, the anger. My sister is being such a trooper through this so I am being as strong as I can for her but when I am alone and the room/ the world is silent I have to try real hard not to fall apart.
    I am thinking of all of you at this difficult time and wishing you all the best Xmas possible!!

  2. Jen:
    Dec 17, 2011 at 06:51 AM

    I just read this excerpt since I have been following your beautiful daughter's journey. In 2009, my son, Joseph, died of a brain stem tumor: his journey with his tumor was just four months. Your posts, this one especially, reminds me so much of what we went through. I would look all around our house and our yard and it was so "still." Almost as if it wanted to jump out of its stillness but there was no one left to make it come alive again. Everything I looked at had a memory and a story. I could almost hear Joseph running through our weedy grass though the yard was empty. And, well said: we do become shadows of our former selves and the challenge becomes making ourselves come "alive" again after suffering the unimaginable death of our precious children. It takes time. And work. Lots of it. And, still, 29 months later, I would describe myself and a new person who may appear like my old self but I know better. I am a new version, forever a work-in-progress, just trying to live as best as I can with the heartache of having lost my beloved son. I do my best everyday and, considering, I think I do a decent job but its hard. So hard. And not a day goes by when he isn't missed, loved and, often, longed for. His little brother (who was just 4 months old when he died) has breathed life into those toys and objects that froze after Joseph's passing and, while that will never have the same feeling it would if Joseph had been the one to do it, it is helpful. Its been a long road and its so hard. But, since I am the only one who can keep Joseph's memory alive, I must walk it. I must walk it in order to parent Joseph in his absence and to fulfill my commitment to parent his little brother, Thomas, and his, now, littlest brother, Bryan. And you will too b/c there aren't any other great alternatives. But all in good time. Baby steps. But, for now, hold that little Stella tight b/c these days that are so horrific and so profoundly sad may actually be treasured by you in the coming years. I know that is hard to imagine but that has been some of my experience. What I once viewed as Joseph's sickest/worst moments are now also seen as moments of utter strength and pure aliveness. I thought he was dying but, in retrospect, I realize he was "living" - I was dying. My heart goes out to you and your whole family. I know we don't know one another but please feel free to reach out anytime: this journey is long and harrowing and support is essential. Your Stella is absolutely beautiful inside and out. Jen Lentz www.thejosephlentzfund.com

  3. Sylvia:
    Dec 15, 2011 at 01:06 AM

    I have read the last three updates * my heart feels likeit is breaking. Mishi, Aimee & Heather I wish I could hold you, take your pain. I cry for you, ache for you & look towards the Heavens to make sense of this suffering. I meditate visualizing Stella's beautiful face, I await updates hoping, praying for a miracle.
    The fact that Stella is still here is atestment to her loving family. I pray you have a beautiful Christmas, may the ANgels craddle & comfort you.
    I have come to love you all so much, you will forever be in my heart.
    Love, light and blessings
    Sylvia

  4. Jody :
    Dec 14, 2011 at 12:45 AM

    Michi & Aimee & Sam & Stella,

    You are living with great courage in the face of such suffering...you find moments of joy from the strength of Stella's spirit and being able to hug her endlessly.. our hearts are breaking for you ...
    Jody & David

  5. Jody Macdonald & family :
    Dec 14, 2011 at 12:42 AM

    Mishi, Aimee, Stella, Sam, Andrea, Marilyn, & John,

    Mishi your thoughts continue to challenge all of us to find joy in life and to value community during such a heartbreaking life experience.. Stella has touched so many lives.. even as her abilities are slipping away... her spirit is growing strong... it is through her spirit that you will stay connected..

    We're all thinking of you and sending love.
    Jody, David, Andy, Kristen, Joana (and Liane & Avi & Leo)

  6. Marg Baldwin:
    Dec 13, 2011 at 01:02 PM

    there are no words that can take this away, but just want you to know my little girl Dana went through the same thing it is heartbreaking to see the change in your child. I wanted to mention this to you awhile a
    go. Cut a piece of Stella Joy's hair to keep. I have a piece of my daughters hair it is all I have left but i DO have a wee part of her still. God Bless your family

  7. Vincent:
    Dec 13, 2011 at 11:28 AM

    i wish i could make this all undone by building a time machine, but i can't. You have make me realize that the most important thing in life is life, i thank you for that. I think people in general don't know what life means, they think of money and how to earn more, though they don't admit it. You have changed so many lives with your blog (at least mine) and i will treasure that for always and ever (i can't even see what i'm typing now) always remember you have made a treasure out of Stella, and i will never forget her or you. You've changed my life in a way i couldn't imagine and i thank you for that, with all my heart.

  8. Julie T:
    Dec 12, 2011 at 10:53 PM

    Continuing to think of you constantly. Thank you for taking the time to share your beautiful family and gorgeous girl with us during such a difficult time...

  9. Sarah Stringer:
    Dec 12, 2011 at 10:05 AM

    Sending love to you and Stella, Aimee & Sam. Thinking of the four of you now, and always. xo

  10. Ann:
    Dec 12, 2011 at 09:19 AM

    Mish,

    I know that you have learned so much about life and yourself over the last 6 months, but it has come at such a high price. I think of you often and will drop by for a quick visit sometime soon.

    love,
    Ann


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