Resources to help you and your family
Understanding The Journey: A Parent's Guide to DIPG (edited by Ruth I. Hoffman)
A book about DIPG and a guide for parents to help deal with the diagnosis. Features stories about Stella.
Available from the American Childhood Cancer Organization
Living Dying: A Guide for Adults Supporting Grieving Children and Teenagers (by Ceilidh Eaton Russell)
Available through the Temmy Latner Centre for Palliative Care
Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death (by Joan Halifax. This is an excellent resource for adults who would like some guidance around being with people who are dying or grieving) Available at Chapters or Amazon. Also look at this video of a lecture by Dr. Halifax discussing her work.
Please add other books or resources that you like and think will be helpful to Stella's family and friends.